Note: A good time to laugh is anytime you can.

Adventures. That’s what my friend Joanne and I called our treks to out-of-the-way places for lunch, sight-seeing or shopping. Sometimes we were gone most of the day. That stopped when I realized I couldn’t leave my husband on his own for so long. So one day Jo and I decided we’d walk right around the corner to Lefty’s for lunch.

“Peter, come with us,” Joanne said.

“No, no, I’m good,” he said. I knew he really didn’t want to listen to us chatter the way we do.

The restaurant is quite small, so we went early to beat the lunch crowd. Our mouths were going faster than the traffic outside when I, facing the street, saw Peter walk past.

“Wonder where he’s going?” I said. I wasn’t worried because he often walks to the grocery a block further. We took our time over lunch. When we got up to leave, I glanced at a table a few feet away, and there sat my husband, his back to us, with a beer in front of him.

Neither Joanne nor I saw him come in. We sidled over to his table and I slid into the chair beside him. “Can I take your order, Sir?” I asked.

He was startled. “I’ve already eaten,” he said, straight-faced. Joanne started laughing.

“I saw you walk past an hour ago.”

“I came back…!”

“Didn’t you see us?” I asked.

“No, didn’t you see me?”

“No, but you must have looked right at us when you came in…”

“I didn’t see you.”

That shouldn’t have surprised me. It isn’t unusual for my husband to come into the room and not see me sitting on the sofa. I wasn’t surprised that we hadn’t seen him since we were at a right angle to his table and his back was to us.

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Artist Rebecca Murtagh’s, Post-it notes installation, Hamilton College, Clinton, NY

A few weeks later, our friends Jerry and Shelia were here. We were going to Lefty’s for dinner, and I told them about Peter not seeing Joanne and me there one lunchtime. They laughed, as did Peter, though I was sure he didn’t remember the day. I stage-whispered to Jerry, “Good stuff for my blog.” He nodded. I should have made a note.

We went around the corner, and while we waited for our food we amused ourselves trying to identify the photos of famous lefties beside our table. We knew da Vinci and Rembrandt, Einstein and Edison, but were stymied by a man I thought was Woodrow Wilson (Henry Ford), and a woman who, we found out, was Helen Keller. Peter joked he’d never met any of them.

As we carried on like the old friends we are, I suddenly thought, this is good stuff, too, but the idea I’d had a few hours earlier hadn’t stuck. I asked Jerry if he remembered my idea.

“Unh uh…oh, Lefty’s!” he blurted.

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Shelia hooted. “You two can’t remember the story and we’re in the restaurant where it happened!” She looked at my husband and laughed. “Pete, who has memory problems now, hm?”

Shared laughs are the best.

 

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 Screen shot 2015-04-18 at 1.02.30 PMArt Fry, co-creator of Post-It® notes, started using the “light tack” notes — 3M’s “solution without a problem” — to mark his hymnal at choir practice. Art’s bright idea is one I use to help Peter, and should use to help myself!

 

Header photo: Rainbow of Post-It notes.

2016 National Society of Newspaper Columnists’ contest finalist. 

Double whammy in four pages and sixteen hundred words!

Comedian Jerry Seinfeld opened the door for me — figuratively, not literally.

Brian Williams, NBC Evening News, did an interview with Seinfeld (11/6/14) to showcase his fifth season of “Comedians in cars getting coffee” web series. Seinfeld veered from the topic however, when he told Williams he’d decided he was someplace on the Autism Spectrum. He’d seen the Broadway play “The curious incident of the dog in the nightime” based on the book by Mark Haddon, and he recognized himself in lead character Christopher Boone. Young Boone, uncomfortable with eye contact, being touched, and with people in general, all common autism traits, is not labeled in the book or the play.

Screen shot 2014-11-11 at 11.22.04 AM“I’ve always been a literal person,” Seinfeld said. “So, if someone says [their child] is the ‘apple of their eye’ I don’t know what that means. There’s no ‘apple’ in an eye.”

He went on to say he’s observed in himself behavior that makes him think he may have autism. “I think, on a very drawn-out scale, I’m on the spectrum,” he said. “Basic social engagement is really a struggle. … But I don’t see it as dysfunctional. I just think of it as an alternate mindset.”

When I watched the interview and a follow-up the next evening, I realized it gave me the opening I’d been looking for to go beyond dementia in this blog. In “Thinking for two” (9/15/14), I wrote: “What keeps Peter somewhat steady, I think, is that he is now, and always has been, so bloody single-minded, the effects of a separate issue. I never thought I’d be glad that was the case.”

The “separate issue” I hintedatwas known as Asperger syndrome (AS) until two years ago. For some years, AS was considered a less severe form of autism. Long before dementia and possible Alzheimer’s disease entered our lives, Leslie described AS to me. I’ve always loved hearing my daughters talk about their careers, Leslie’s teaching related to autism spectrum disorders,* and the drama that is inherent in Carolynn’s oncology nursing field.

[*The American Psychological Association did away with the term Asperger’s Syndrome in 2012. But it was years earlier that Leslie enlightened me about AS, so I will use the term here, and stand corrected by my daughter later.]

In our long-ago conversation Leslie explained that people with the diagnosis frequently were slow to talk as children, unable to converse as adults, couldn’t look others in the eye or show emotion, and they weren’t necessarily personable.

“That sounds like Peter!” I said. “His mother had a stack of books she’d read when he was little to try to figure out why he wouldn’t talk. He was such a loner, but always comfortable with much older people or much younger children.” That was still true. I didn’t know whether to laugh or cry.

“I didn’t know all that, Mom,” Leslie said, “but, you’re right, a lot of of the characteristics apply, and goodness knows he’s uncomfortable in social situations.”

She said she’d test him — Leslie can get Peter to agree to anything — and thus that part of our journey began.

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