Could be a whole lot worse!

Most of January, I was mired in gloom worthy of Charles Dickens’ Bleak House, and for no good reason really. We are fortunate to have good long-term care insurance, I have companion help for Peter, and house-cleaning help for me. Best of all, Leslie is close by to bolster me, and Carolynn cheerleads from 596 miles away.

Could be a whole lot worse.

A well-timed phone call jerked me right back to my senses last week. Several times a year, our insurance company nurses call to ask routine questions: “Does Mr. Clarke need help bathing himself? Does he need help brushing his teeth? Has Mr. Clarke had any falls lately? Does he need help toileting? Is he incontinent? Does he have a problem falling asleep or staying asleep?” I always answer no. When they ask him directly how he’s doing, he charms them with a cheery “So far, so good.”

Before she rang off the nurse asked for more detail about his days. Peter is way more forgetful than the last time she checked, I told her, and more confused generally. And no, he can’t really converse except with me or other family members. We try to fill in the blanks and make sense of what we think he wants to say.

But, Peter copes better than most. He doesn’t need nursing care — yet — and he still “lets the dog walk him twice a day.” His sense of humor is intact, and although he often wears me out with his silly jokes and continuous corny patter, he takes care of me in the only way he can. He makes me laugh.

A recent morning for instance.

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If not now, when?

I’d been begging him to get rid of the moth-eaten, raggedy wool sweater he wears all the time. I dug into his drawerful of English cardigans —”cardis” he calls them — and found a marine blue double knit one. “Maybe you’d like to wear this for a change,” I said when I handed it to him. I thought sure he’d recognize it as one his mum had sent more than forty-five years ago, but he didn’t. He’s never worn it, but he’s always said he would when he was an old man. If not now, when? I thought.

Darned if he didn’t put it on right away. I wasn’t surprised how perfect it looked with the blue tattersall shirt he was wearing. I spread praise thickly.

He looked in the mirror, tucked his chin in, puffed his chest out, and said in a rumbling Churchillian voice, “Hrmp hrmp, erm, yes, jolly good, yes, I say, yes, mmm….”

When I burst out laughing, he wrapped me in a hug and I asked myself, what in the bloody heck do I have to feel depressed about?

Header photo: Close-up of Peter’s moth-eaten, raggedy wool sweater.

 

2016 National Society of Newspaper Columnists’ contest finalist. 

 

What can I do?

My brain had short circuited. I clutched my head and tried to figure out which problem to tackle next.  Just then, Peter peeked around the door. “Can I do anything to help?” he asked.

My pitiful smile didn’t reach my eyes. “Could you give me some peace of mind?” I asked. “That would help.”

He chuckled. “You want a piece of my mind?” he said.

The tears that had threatened dried up. Just that brief exchange lightened my mood.

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Photos: Sailing to Alaska (2006)

2016 National Society of Newspaper Columnists’ contest finalist. 

Picking up sticks is about control.

These days, my husband attends to specific tasks he sets for himself whether they need doing or not, repeating the steps carefully, obsessively. I bite my tongue and turn away because I want to scream, “Please do something that helps. I’m doing everything and you’re picking up *#! sticks!”

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When I sat down to write this post, he was doing it again, right outside my window — collecting twigs that were blown off the trees during two days of high wind. In his mind, I think, he knows tiny sticks are something he can still control.

In my mind, I wish he’d remember I asked him to mow the grass. Grass-cutting is on the list, a list he checks every thirty minutes or so, but never remembers. I learned long ago, as most wives do, nagging doesn’t work, dementia or no.

Ever since he retired, Peter has cleared the dishes willingly after dinner, but now he’s become obsessive about the task. He won’t leave the house to walk the dog unless the job is done, even when I tell him I’ll clear. To be honest, he doesn’t like the way I clean up! I’m not as fussy as he is.

He wipes our countertops endlessly to “polish” them, but to do it he uses any grungy cloth he finds under the sink from the supply I keep to wipe splatters off the floor. When I showed him the special granite-cleaning cloth he scoffed, so I use it secretly with the special cleaner when he’s not around. He gets very offended if I do or say anything that suggests he’s not done a job correctly.

Once, when I made an even worse-than-usual mess baking bread, I had to leave it to attend to something else. When I returned to the kitchen, it was spotless. “Wow! Thank you for cleaning up my ‘bread mess,’” I said.

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Peter’s eyes twinkled. He loves homemade bread. “Thank you for messing up my clean,” he said.

He’s still so quick, and of course I laughed.

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So, no matter how frustrated I get, I try very hard to remember that my husband can’t help what is happening to him. I know he’d give anything, even his entire Mickey Mouse collection, to turn the clock back to a time when he was in control of his life.

 

 

Header photo: Peter imagines himself picking up all those sticks, 2008

2016 National Society of Newspaper Columnists’ contest finalist.